Resources for Families

Rise Again wants to help families impacted by spinal cord injuries by offering support. There are many organizations available that can lend a hand.

Equipment Needs

Dreams & Wishes

Home & Vehicle Modifications

Adaptive Sports Equipment and Fees

Vision

College Scholarships

Other Services and Grants

Therapy & Alternative Options

Our journey has brought us to people and place we would have never even thought about a few years ago.  You have to find what works the best for you and seek out alternatives when necessary.

Physical Therapy & Occupational Therapy

Alex participates in outpatient therapy at the Frazier Institute which is part of the University of Louisville Kosair Charities Center for Pediatric NeuroRecovery. “An activity-based therapy is a physical rehabilitation therapy that’s purpose is to “activate” or “turn on” the nerves and muscles affected by a neurological impairment.” They primarily focus on locomotor therapy for 1 hour and 30 minutes over ground. Currently this is the only NeuroRecoveryNetwork facility for pediatrics.  Typically you would go for an evaluation and plan for 20/40/60 consecutive sessions.  There is also an adult section as well both offering therapy and research for patients. You can find out more at https://victoryoverparalysis.org/  Alex was featured in a commercial about the program in Kentucky.  You can view it at: http://www.uoflforkids.com.
 
Alex’s therapists at home in the Pittsburgh area are so receptive to learning more and it will be a collaborative effort when deciding on the next steps in Alex’s program. You have to create the program that will achieve your goals. The typical protocol here may not be appropriate for you.
 
In Pittsburgh pediatrics and adolescents can participate in locomotor training.

Aqua Therapy

Aqua Therapy can be tailored to your goals. Locally in Pittsburgh there are a few places to look into.

Acupuncture

In researching spinal cord injuries, acupuncture kept coming up as an option. We watched the documentary 9000 Needles. Finding an acupuncturist isn’t easy. We are so fortunate to have found one in Wexford, PA.  There are many benefits to acupuncture including improving your immune system.  Our doctor is so good about adding in the appropriate supplements, testing and nutritional counseling, too.

https://www.facebook.com/Dr-Michelle-Tucker-ND-L-Ac-178558405519664/info/?tab=overview

Nutrition                                                                                                                         

We were looking at optimizing Alex’s therapy buy fueling it from within. Our decision was to have our family go to a functional medicine doctor.  We went to Dr. Conan Shaw in Seven Fields who works with a variety of conditions looking at the cause and not just symptoms.  Alex is on an anti-inflammatory diet and supplements to promote neuro recovery. http://www.pittsburghnutritioncounseling.com/  There is also a functional medicine team in Cleveland, OH. http://my.clevelandclinic.org/services/center-for-functional-medicine

Massage

Alex has grown in a short period of time and we have seen his muscles get tighter in his hamstrings.  It has made it increasingly hard for Alex to straighten his legs himself.  We decided to try massage.  Alex goes to Dr. Brent Carlini.  We have been learning it isn’t just his hamstrings that are tight.  It starts at his neck and back.  Alex has a ways to go with getting his overworked muscles to relax.  http://www.mindfullivingpittsburgh.com/what-is-massage-therapy

Adaptive Sports/Activities

Sled Hockey
Mighty Penguins-Cranberry Twp., PA                                                                   http://www.penguinssledhockey.org/
https://www.facebook.com/Mighty-Penguins-Sled-Hockey-144764708970644/
http://www.usahockey.com/sledhockey

Baseball
Miracle League of Southwestern PA
http://mlswpa.org/

Rugby, Shark, Basketball—Wheelchair Sports Clinics                                           

The Hope Network—The Children’s Institute Squirrel Hill, PA
Bring your friends plenty of wheelchairs so you can have fun together! The Hope Network also can assist in help in any other sport you have interest in including track and field.
http://www.hopenetwork-pa.org/

Dancing
Performances, Clinics, Lessons—Cleveland, OH
http://www.dancingwheels.org/

Theradance–Pittsburgh, PA
http://www.chp.edu/our-services/center-for-independence/theradance

Wheelchair Tennis—Louisville, KY
University of Louisville Meg Peavy
http://louisville.edu/org/tennis/staff/

Adaptive Swimming Lessons for Kids
Ask for Nina-Class offered on Saturdays and there is a waiting list
http://www.oxfordathleticclub.com/

Handcycling
Apply for a grant and get riding on a handcycle!
http://www.roadrunnersports.com/rrs/content/topic.jsp?contentId=1800024

Enjoy racing with your handcycle at the Team Alex Fund www.teamalexfund.org  and Achilles Foundation http://www.achillespghrace.com/ races in the spring at North Park in Pittsburgh.

Fencing
http://www.louisvillefencing.org/JoomlaLFC/

Adaptive Rowing
http://www.louisvillerowingclub.org/

Skiing
http://www.traspa.org/

Disabled Sports USA                                                  http://www.disabledsportsusa.org/                                                                           

The E-Team is designed to support and empower to young emerging athletes with a disability training competitively in Summer and Winter Paralympic Sports.       

Supplies–Items that might help out